Surveillance and disease data for variant Creutzfeldt-Jakob disease

The surveillance of vCJD became mandatory in the EU in 2000 (Commission Decision 2000/96/EC). The EuroCJD network, established in 1993, was evaluated and transferred under the responsibility of ECDC in 2007. And the surveillance is currently performed by this network, which is co-ordinated from the National CJD Research & Surveillance Unit based in Edinburgh and funded by ECDC. There are now 29 collaborating centres from EU Member States and EEA/EFTA countries. The case definitions for vCJD apply to all EU countries.
The reporting, including all historical cases, was established in TESSy in 2012.

External links:

Image library: An information resource of images of the investigations and neuropathology of different forms of human prion disease, including vCJD.

National CJD Research & Surveillance Unit, Edinburgh University: EU Reference Centre